Morecambe Bay ME Group

Helping those affected by ME/CFS and their carers

What is ME/ CFS?

ME/ CFS is a chronic illness, affecting the immune, hormone and central nervous systems. The main symptoms are severe and overwhelming fatigue, muscle pain and weakness, flu-like feelings (e.g. sore throat, enlarged glands and joint pains), sleep and mood disturbance. Many other symptoms can occur. Symptoms fluctuate from day to day and the patient experiences periods of relapse and partial recovery.

How does ME/ CFS typically start?

Some form of infection (e.g. flu, glandular fever, hepatitis, tonsillitis) is the most usual trigger. Less common triggers include vaccinations (e.g. Hepatitis B), pesticides (e.g. organophosphate sheep dip) and major stressful events.

Is there a diagnostic test?

A diagnosis has to be made on the typical pattern of symptoms together with exclusion of the many other causes of chronic fatigue. Your doctor may offer you a number of routine blood tests in order to exclude other conditions.

What are the chances of recovering from ME/ CFS?

Over time, most sufferers gradually improve, although there may be occasional setbacks, due to infections, operations and stressful events.

How should I manage ME/ CFS?

There is no one treatment which is effective for everybody, but some things increase the likelihood of improvement. Sufficient rest, especially in the early stages and during setbacks is advisable. On the other hand, prolonged bed rest beyond the acute stage has its dangers, since the patient can become trapped in a vicious circle of immobility and weakness.
You will need to find a balance of rest and activity. A good, healthy diet with plenty of fruit and vegetables can help. Alternative therapies, such as acupuncture and homeopathy, may be worth a try. Evening primrose oil has been shown to relieve symptoms.

Who are the Morecambe Bay ME Group?

Morecambe Bay ME Group is an association of local people, both sufferers and carers, who have come together with the following aims:

  • To provide mutual support and companionship
  • To keep members updated with medical research and treatment regimes
  • To give information about benefits, social services and aid agencies
  • To campaign for better NHS services within Morecambe Bay area

Officers of Morecambe Bay ME Group

Chair: Shireen Anthony

Vice-Chair: Sue Widden

Secretary:  Adrian Cunningham

Treasurer:  Jeremy Boreham

Committee members:

Sue Becker, Kim Graveson, Lindsay Maskell, Amy Stone, Edwin Thwaites

Contacts:

If you have ME or care for someone with ME, and would like to speak to someone, contacts are arranged on an area-by-area basis. Click here for a list of contacts.

What can the local group offer you?

Monthly meetings with a speaker

Speaker meetings are held in the Friends' Meeting House, Meeting House Lane, Lancaster (next to Lancaster railway station).  Wheelchair access is available, and there is a car park for disabled people at the rear of the building.  Talks usually last for about half an hour, and there is plenty of time to meet other sufferers and chat over a cup of tea or coffee.

Speaker meetings programme

Social groups meet informally in cafés or people's homes, in various locations around the Bay area.

They are informal opportunities to get together with other people with ME for a friendly chat.

The meetings last as long as people want them to.

Click here for news about forthcoming socials

For further details please check your newsletter, or telephone your local contact, or email info@bayme.org. 

Group Newsletter

A newsletter appears every couple of months.  We are always delighted to hear from members with feedback about, or information for, the newsletter.

To be placed on the mailing list please telephone your local contact or email info@bayme.org.

List of useful organisations

Carers

People caring for those with ME/CFS may feel isolated and resentful and become depressed by the long term nature of the illness. The group is aware of carers’ problems, and offers support.

Information for Carers

Getting Benefits

Rights for ME: a caseworker provides advice on accessing benefits and pensions, in partnership with Lancaster CAB. He carries out home visits across the Morecambe Bay area. Click here for more information or contact the referrals helpline on 01524 65842.

How to contact us

To learn more about Morecambe Bay ME Group, please telephone your local contact, or email info@bayme.org.

National Organisations

Action for ME:
Telephone: 0845 123 2380
http://www.afme.org.uk

Association of Young People with ME
Telephone: 0845 123 2389
http://www.ayme.org.uk

ME Association:
Telephone: 0870 444 1836
http://www.meassociation.org.uk

All information Copyright 2007 Morecambe Bay ME Group

Disclaimer: Whilst every effort is taken to ensure that the information contained in this website is accurate, Morecambe Bay ME Group accept no responsibility for action taken as a result of reading material contained on their website. Morecambe Bay ME Group are not qualified medical professionals. If you suspect you may be an ME/ CFS sufferer you should contact your GP for advice.

Registered Charity no. 1084277

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